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News Wire / science

New Communication Technology Developed For Rare Condition

BBC WS backup London 14d14d Impact 5
A man named Ari created a communication system to help his brother, Ben, interact more effectively. A new communication and entertainment system has been designed and built to allow individuals with a rare condition to engage with the world.

Topics

communication technology rare diseases

Developing

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Sources · 7 independent

BBC WS backup

“He is just laughing and joking and the fact he can just talk to me like any brother would you know telling me off and stuff It's like I got my brother back to talk to it's something I've always dreamed of”

BBC WS backup

“they designed and built a communication and entertainment system that he can control with two head switches. Ben used the system to speak to the happy pods”

BBC World Service

“all this work into creating a technology for you that improves your... that we talk about tub 4A and your condition.”

BBC World Service

“Ben has a condition called tub 4A related leukodystrophy. It is a condition that affects the myelin sheath in the brain.”

BBC World Service

“So essentially, Ben went to walking and talking as a little kid to, you know, being in a wheelchair, losing ability to use his hands, losing the ability to speak from a young age.”

BBC WS backup

“after those times to now using his software, he is just laughing and joking and the fact he can just talk to me like any brother would”

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